Andrea (first_lobster) wrote in hard_of_hearing,
Andrea
first_lobster
hard_of_hearing

I'm currently studying to be a speech-language pathologist and am taking an auditory rehabilitation course this summer that requires me to complete a short paper with interviews with people with hearing loss who use or have used a hearing aid. I figured this community might be a good place to start (though I know that not everyone who is hard of hearing uses a hearing aid.)

The survey is rather short and I've copied the questions
1. How long have you worn your hearing aids?

2. For how long before you got your hearing aids did you suspect you had a hearing loss?

3. How long do you wear your hearing aids each day?

4. Do you feel like you get benefit from your hearing aids?

5. What complaints do you have about your hearing aids?

6. Do you feel like your hearing aids have lived up to what your audiologist or hearing
aid dealer told you they would do?

7. Did you get your hearing aids from an audiologist or a hearing aid dealer?

Any help would be greatly appreciated!
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I'll help with your survey. I didn't see a link to anywhere so I assume it's ok to comment here for the answers:

1. I've required hearing aids close to 15 years. My current aids are over-the-ear which I've had for 3 years. Before that I had in-the-ear aids.
2. I hadn't noticed myself. My employer/boss noticed and suggested a hearing eval.
3. From the time I get up until bed which could be anywhere from 12 - 18 hours. I rarely take them off unless I don't need them (reading a book/magazine)
4. I do benefit from my hearing aids to the extent that without them I have very little auditory functioning and I would require other means of communicating (i.e. sign language which I currently don't use or require as long as I have my aids).
5. My current aids require others to communicate in a specific manner; facing me, in close enough proximity, with enough volume and clear enough pronunciation of their words. I can also only understand one person talking at one time. I cannot understand when there are 2 or more people talking at once. I also cannot understand others when there is extraneous noise (TV, the radio, etc.). Room acoustics also make a difference. I have a harder time in large rooms especially with many windows. I did not have as many limitations with my previous aids.
6. My current audiologist says my hearing aids are the best ones I can get (with the government money that paid for them).
7. I rec'd my hearing aids through a grant via Vocational & Educational Services for Individuals with Disabilities in Rochester, NY (Part of the NYS Education Dept). They had me go to my audiologist for a hearing test and fitting and recommended which aids would work best for me.

I hope these answers gave you enough for your survey. If you have any more questions just send me a note.
Thank you so much for your response!

In my (short, so far) time studying this, I've found it shocking how expensive the hearing aids and their parts (batteries, etc) can be - it's great they have a program to help!

yira_heerai

May 20 2012, 05:10:47 UTC 4 years ago Edited:  May 20 2012, 05:11:28 UTC

1. How long have you worn your hearing aids? Since 1998

2. For how long before you got your hearing aids did you suspect you had a hearing loss? I was already deaf in one ear and the loss in my left ear was a traumatic, sudden loss so I don't remember very well. According to my mother, there was a three day period, I think it was, where we suspected I had swimmer's ear or an ear infection due to cloudiness in my hearing. Then it was gone.

3. How long do you wear your hearing aids each day?

4. Do you feel like you get benefit from your hearing aids? I'd say about a ten hour period if I can. Various things causes me to take it out, but I do try to wear it as often as possible.

5. What complaints do you have about your hearing aids? Sometimes it actually dampens what I'm trying to hear because, I guess, it's beyond the threshold that's set in my hearing aid.

6. Do you feel like your hearing aid/s have lived up to what your audiologist or hearing
aid dealer told you they would do?
Yes.

7. Did you get your hearing aids from an audiologist or a hearing aid dealer? Audiologist.
Thank you, also!
You didn't specify what country, so hopefully UK answers will help you:

1. How long have you worn your hearing aids? 23 years (only one for 9 years, then two)

2. For how long before you got your hearing aids did you suspect you had a hearing loss? I got my first aid age 14. I had profound hearing loss as a small child, with glue ear, grommets, T-tube etc, but then was lost to followup for about 6 years and told I was fine - until my piano teacher flipped when I couldn't hear someone playing next door, did an impromptu test, physically dragged me to the school nurse (despite herself walking with a stick and the nurse being up 3 flights of stairs), and jabbed the nurse in the chest with the stick and said "This girl is deaf. What are you going to do about it?"
I had an appt with an audiologist within the week and a hearing aid a couple months later. I thought I couldn't hear as well as other people but as I did well academically in old-fashioned face-the-front, copy-off-the-board schools, no-one believed me. Especially as they did a hearing + sight test at school each year - but no-one ever told the nurse what to look for on hearing tests, so they all just got shoved in a drawer, until said piano teacher took a look and told the nurse she was a moron...

3. How long do you wear your hearing aids each day?
If I'm going to work or out etc, about 12 hours, but if I'm at home for much of the day I'll only put them in before leaving the house. Some evenings I take them out, too.

4. Do you feel like you get benefit from your hearing aids?
Hell yes. With them, I can just about use a telephone when necessary, and understand high-pitched voices like women and children, mostly.

5. What complaints do you have about your hearing aids? They don't help much when there's background noise. And there's no off button, only ability to open the battery compartment. And the earmoulds aren't the colour I ordered. I had to compromise on looks to get a volume control, too.

6. Do you feel like your hearing aid/s have lived up to what your audiologist or hearing
aid dealer told you they would do?
As the audios only promised they would work and not have the recruitment probs my last set did, can't complain - they are state of the art. If I'd got aids when younger I might have better results.

7. Did you get your hearing aids from an audiologist or a hearing aid dealer? Audiologist (NHS). Dealers here are generally scum who prey on old people's fear of looking 'old' and sell only 'discreet' bits of tat for a fortune without mentioning the same is available for free on the NHS.
Thank you so much - that's an incredible story about your piano teacher - it's an example of a good case of sticking your nose in where it actually belongs!
1. How long have you worn your hearing aids? I have been wearing mine for 27 years.

2. For how long before you got your hearing aids did you suspect you had a hearing loss? My family suspected it but we didn't know for sure until I was almost 2 1/2 years old.

3. How long do you wear your hearing aids each day? I wear it from the time I wake up to bedtime most days. In summer time due to humidity, I don't wear it as much since I don't go to places as much in summer like I do rest of year.

4. Do you feel like you get benefit from your hearing aids? Yes, it helps me with my lipreading skills. It also lets me enjoy music - the beats.

5. What complaints do you have about your hearing aids? I wish they would be waterproof- to help with summer humidity issue and I don't wear them when I work out for the same reason (sweat).

6. Do you feel like your hearing aids have lived up to what your audiologist or hearing
aid dealer told you they would do? Yes, I feel like they have lived up to what the audiologist has told me about them.

7. Did you get your hearing aids from an audiologist or a hearing aid dealer? From an audiologist

Thank you SO MUCH for your response! :)
1. How long have you worn your hearing aids?

My son has worn his hearing aids since he was 13 months old. He is now almost 20.

2. For how long before you got your hearing aids did you suspect you had a hearing loss?

His hearing loss was suspected when he was six months old, and confirmed when he was 12 months old.

3. How long do you wear your hearing aids each day?

From the moment he got them, he wore them from waking in the morning until falling asleep at night. When he was a child, we often had to take them off after he fell asleep.

4. Do you feel like you get benefit from your hearing aids?

At 13 months old, he would cry if we had to take them for even a minute, and wanted to wear them even in the bathtub.

5. What complaints do you have about your hearing aids?

Cost. He's about to get his third pair of digital hearing aids - the last pair he can get through an agency that provides assistance for children. Even with their help the cost is 8 times what he paid for his car.

6. Do you feel like your hearing aids have lived up to what your audiologist or hearing aid dealer told you they would do?

Above and beyond. He has no noticeable speech impairment and can follow most conversations easily.

7. Did you get your hearing aids from an audiologist or a hearing aid dealer?

Audiologist.

My apologies for answering on behalf of my son - if that means you cannot use the answers. He hates surveys with a passion.
Thank you so much, this is a great perspective! :)
I'm glad I could help.

I want to add, because I see a number of people have been mentioning problems that probably relate to analog hearing aids like a perception that sounds are dampened.

My son had analog aids first, but switched to digital at about age 8 or 9. He can't bear to go back to analog loaners if his hearing aids are out of commission. He says now that they are too annoying.

The first day he had digital aids he came down the hallway of our house bouncing a ball on his hand and saying, "Look Mom! It makes a sound. It goes 'pip pip pip.'" His last few artifacts of hearing loss (dropped or transposed consonants) all but disappeared within hours.

He is a candidate for cochlear implant so we did discuss it with him about four or five years ago, but he has been so very pleased with each new set of hearing aids that he would not consider giving up his residual hearing.
1. How long have you worn your hearing aids? Since a little before three years old.

2. For how long before you got your hearing aids did you suspect you had a hearing loss? My parents tell me that we were all on a trip in California when my aunt raised her suscipions about my hearing loss to my parents --she had a neighbor who was either deaf or hearing impaired. While there, my parents started the process of getting me tested for hearing loss.

3. How long do you wear your hearing aids each day? Every day. Except when sleeping, showering, swimming, or lounging in bed with a head cold/headache.

4. Do you feel like you get benefit from your hearing aids? Oh heck yeah!

5. What complaints do you have about your hearing aids? Can't turn them off unless I open the battery compartment.

6. Do you feel like your hearing aids have lived up to what your audiologist or hearing
aid dealer told you they would do? Pfft! They told me that with hearing aids in both ears, I would able to tell which direction a sound is coming from. I still turn left even when the sound is coming from the right.

7. Did you get your hearing aids from an audiologist or a hearing aid dealer? Both. Currently use dealer since I have known him for so long.
Thank you so much for your response!
1. How long have you worn your hearing aids?
Since the age of 4

2. For how long before you got your hearing aids did you suspect you had a hearing loss?
I got it detected at the mandatory 4 year checkup. Though, after it was confirmed, my parents have seen signs earlier that they didn't connect with hearing loss. Me asking for repetition when someone else than someone I knew saying something was seen as a sign of shyness and not hearing loss for example.

3. How long do you wear your hearing aids each day?
When out of my home, I always wear them. At home I wear them if I got visitors or need them to hear. For example when listening to radio or usually (but not always) for TV. For TV shows (which I tend to watch via the on-demand site of the TV-channel), there is usually text and sometimes also a sign language interpreted version.

4. Do you feel like you get benefit from your hearing aids?
Sure. I wouldn't want to live a day without them. There are situations, when I have problems even with them, so I wouldn't like to try without them.

5. What complaints do you have about your hearing aids?
I dislike the push-button for switching programs. Its just a long cycle with all programs that you can cycle through in one direction. For me it means, that while my hearing aids support up to 5 programs, I have cramped in the essential features in 3 programs and left out the others to have something which allows quick operation. When you got someone infront of you that have already started to speak, you need to be able to go from T-mode to M-mode in a split second.

The analog hearing aids was brilliant on this matter. They had a hardware switch with three physical positions. M, MT and T. With M on the left, MT in the middle and T on the right. After years of wearing HAs it was truly a split second to change program. With the cyclic program operation in digitals, you have to remember where you are in order to know how many clicks to get where you want. Or you have to listen to the tones it gives, but that takes lots of more time than going to "left end" or "right end" or even "middle".

If you complain on this, they tend to try to sell you a remote, but that is even slower as you then have to also remember where the remote is and get it out of your pocket or where it is.

6. Do you feel like your hearing aids have lived up to what your audiologist or hearing aid dealer told you they would do?
I don't really remember any promise from any audiologist or hearing aid dealer. It's not like they have promised anything.

7. Did you get your hearing aids from an audiologist or a hearing aid dealer?
I'm not completely sure what these two terms corresponds to in Sweden. The person who have fit my current hearing aids was an audiologist working at the unit for hard of hearing at the hospital of the city/town (with our standards its a mid-size city, but some other country might rate it as a town). I guess that fits your first category.
1. How long have you worn your hearing aids? 6 months

2. For how long before you got your hearing aids did you suspect you had a hearing loss? Been HOH since small child - 48 yrs

3. How long do you wear your hearing aids each day? 12 hours

4. Do you feel like you get benefit from your hearing aids? yes

5. What complaints do you have about your hearing aids? machine noises in public, static noises, easily seen BTE

6. Do you feel like your hearing aids have lived up to what your audiologist or hearing
aid dealer told you they would do? They warned aids only help hear naturally. You have to learn how to hear with them again.

7. Did you get your hearing aids from an audiologist or a hearing aid dealer? dealer after going to audiologist for testing. I was trying to find cheapest. But that is not ideal thing to do. I wish I could have afforded better ones.